''Schuyler's Monster: A Father’s Journey with His Wordless Daughter'' by Robert Rummel-Hudson
All living things, with the exception of clones and genetically engineered corn and soybeans, are unique. Of course that includes children. Every kid has a collection of traits, quirks, interests, annoying habits, talents and abilities that makes him or her truly special. That’s why education should be “special” for every child. Unfortunately it’s not. Far from it.
In spite of the “Everyone turn to page 57 in your math book” approach to learning that is so 20th century and still going strong, typical children will muddle through their K-12 years and come out the other end having succeeded to one degree or another.
But for the millions of “special needs kids” who are entitled by law to receive truly special education, many are being grossly short-changed. Why? Crippling state budget cuts aside, the crux of the problem is sometimes in the approach of educators who prejudge a child’s ultimate learning potential and design programs based on what a special needs student “can’t” do rather than acknowledging what he or she may not be able to do “yet.” Education is about opening doors. No one can map out the limits of any child’s potential. That boundary line has been drawn yet.
All kids need parents to advocate for them. Special needs kids need especially loud and pushy parents to go to bat for them at school and help them get what they require to succeed.
In this week’s podcast I talk with Robert Rummel-Hudson author of Schuyler’s Monster: A Father’s Journey With His Wordless Daughter. We talk candidly about his daughter Schuyler, born with a rare neurological disorder that makes language acquisition extremely difficult. We discuss the challenges of connecting with a special needs child and the obstacles parents often encounter when dealing with schools. We also talk about what every parent of a special needs child needs to know in order to be your child’s most ferocious and unyielding advocate.
Have a listen here:
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If you have iTunes, you can subscribe to this podcast in the iTunes Store.
Or, you can download an MP3 version here.
Upcoming guests include:
Wednesday Martin, author of Stepmonster: A New Look At Why Stepmothers Think, Feel And Act The Way We Do
Ayelet Waldman, author of Bad Mother: A Chronicle of Maternal Crimes, Minor Calamities, And Occasional Moments of Grace
Izzy Rose, author of The Package Deal: My (not-so) Glamorous Transition from Single Gal to Instant Mom
Diane E. Levin, co-author (with Jean Kilbourne) of So Sexy So Soon: The New Sexualized Childhood And What Parents Can Do to Protect Their Kids
Rachel Simmons, author of The Curse of the Good Girl: Raising Authentic Girls with Courage and Confidence
Special thanks to our friend and musician/composer Curt Siffert who let us use his song, “Broken Frost” for the opening of this podcast.
*What’s a podcast? “A podcast is a series of digital media files, usually either digital audio or video, that is made available for download via web syndication.” – Wikipedia… So, in this case, there’s an audio file for you to listen to (in addition to reading the above).
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